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CHERUBS Forum Index » How You Can Help » Awareness Activities, Fundraisers, Angels for CHERUBS and more! (Public) » Baby Books?

Author	Message
Dawn Torrence Williamson Administrator Age: 36 Joined: 01 Jun 2007 Posts: 3883 Location: NC, USA MembersFirstName: Dawn ChildsFirstName: Jeremy ChildsMiddleName: Shane ChildsLastName: Torrence DueDate: 1993-02-04 BirthDate: 1993-01-28 DeathDate: 1999-09-11 State: NC Country: USA	Posted: Sat Oct 06, 2007 8:33 pm  Post subject:  Baby Books? If we designed and offered a baby book, would any of you be interested? Something that would be geared toward babies in the NICU / PICU rather than the typical baby book. It would be written so that all critically ill newborns could use it, not just CDH babies. What does everyone think? If you're interested in this idea and helping out with it, please make sure to volunteer! We still need authors and artists for our kids books! _________________ mom of Shane (1/28/93-9/11/99) LCDH x 6, multiple complications and birth defects, Duke PICU first 10 months, trach for 3 years, vent for 2 years, oxygen for 2.5 years, developmentally delayed, cerebra palsy, hearing impaired, blind for 1 yr, home-schooled, Mic-Key button and severe feeding issues, pneumonia, blood infection, ASD, pulmonary sequestration, tracheomalacia, bilateral undescended testes, hypospadius, etc... you name it, the kid probably had it, except for ECMO. Walked, did sign language, adored Sesames St and books and his Precious Moments doll... despite all a very, very happy and loving and generous kid. Lost to extremely rare complications due to reherniation and gastropleural fistula at age 6 and a half. Also wife to my amazing, supportive, wonderful husband, Craig and step-mom to my incredible 13-yr-old twins, Braden and Garret also President & Founder, CHERUBS since 1995
DanielleKessner Age: 40 Joined: 01 Jun 2007 Posts: 945 Location: Victoria, Australia MembersFirstName: Danielle ChildsFirstName: Alyssa ChildsMiddleName: Catherine ChildsLastName: Kessner BirthDate: 1992-05-21 DeathDate: 1992-05-22 State: VIC Country: Australia	Posted: Sat Oct 06, 2007 10:09 pm  Post subject:  (No subject) I think this is a WONDERFUL idea. I won't volunteer as I really didn't spend much time in NICU so don't really know what would work best etc. But I am sure we have HEAPS of members who could help out. I think a lot of family and friends would love to buy this as a gift for parents expecting a sick baby. I would certainly buy it for people if I knew they would be in that situation. _________________ Danielle, mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth, Tara 16 and Ethan 13. CHERUBS Australia President www.cdh.org.au
Barbara and KevinWagner Age: 38 Joined: 01 Jun 2007 Posts: 1010 Location: Flint, Mi MembersFirstName: Barbara and Kevin ChildsFirstName: Logan ChildsMiddleName: Lee ChildsLastName: Wagner DueDate: 1997-05-22 BirthDate: 1997-05-15 State: MI Country: USA	Posted: Sun Oct 07, 2007 12:24 am  Post subject:  (No subject) Dawn this has always been one of my biggest complaints!! We NICU parents just can not use a standard baby book........(where in the world would you put ECMO?!?!!).........I made one for myself and have always said that one should be put out there! Barbara
Dawn Torrence Williamson Administrator Age: 36 Joined: 01 Jun 2007 Posts: 3883 Location: NC, USA MembersFirstName: Dawn ChildsFirstName: Jeremy ChildsMiddleName: Shane ChildsLastName: Torrence DueDate: 1993-02-04 BirthDate: 1993-01-28 DeathDate: 1999-09-11 State: NC Country: USA	Posted: Sun Oct 07, 2007 12:33 am  Post subject:  (No subject) Barb, since you have experience at this, does this mean I can recruit you? What are we doing up at 1:30 am? I'm off to bed. I'll draft you for this tomorrow. _________________ mom of Shane (1/28/93-9/11/99) LCDH x 6, multiple complications and birth defects, Duke PICU first 10 months, trach for 3 years, vent for 2 years, oxygen for 2.5 years, developmentally delayed, cerebra palsy, hearing impaired, blind for 1 yr, home-schooled, Mic-Key button and severe feeding issues, pneumonia, blood infection, ASD, pulmonary sequestration, tracheomalacia, bilateral undescended testes, hypospadius, etc... you name it, the kid probably had it, except for ECMO. Walked, did sign language, adored Sesames St and books and his Precious Moments doll... despite all a very, very happy and loving and generous kid. Lost to extremely rare complications due to reherniation and gastropleural fistula at age 6 and a half. Also wife to my amazing, supportive, wonderful husband, Craig and step-mom to my incredible 13-yr-old twins, Braden and Garret also President & Founder, CHERUBS since 1995
Barbara and KevinWagner Age: 38 Joined: 01 Jun 2007 Posts: 1010 Location: Flint, Mi MembersFirstName: Barbara and Kevin ChildsFirstName: Logan ChildsMiddleName: Lee ChildsLastName: Wagner DueDate: 1997-05-22 BirthDate: 1997-05-15 State: MI Country: USA	Posted: Sun Oct 07, 2007 2:01 am  Post subject:  (No subject) LOL Ok I can be drafted! Hehehehe! I am off to bed also! Night!
Chantal Verzijl Age: 33 Joined: 28 Sep 2007 Posts: 3 Location: Zeist MembersFirstName: Chantal ChildsFirstName: Kaylee ChildsMiddleName: Naomi ChildsLastName: van Ede DueDate: 2006-08-14 BirthDate: 2006-07-26 State: Utrecht Country: The Netherlands	Posted: Sun Oct 07, 2007 4:50 am  Post subject:  (No subject) I think this is a great idea. I kept a diary when Kaylee was on ICU and still do, but I think I would be a very nice gift for parents who are expecting a sick baby.
karahess Age: 37 Joined: 28 Sep 2007 Posts: 1874 Location: Uniontown, Ohio MembersFirstName: Kara and Charles ChildsFirstName: Adam ChildsMiddleName: Charles ChildsLastName: Hess DueDate: 2006-08-07 BirthDate: 2006-08-07 State: OH Country: USA	Posted: Sun Oct 07, 2007 7:15 am  Post subject:  (No subject) This is a great idea! I was given a baby book from the March of Dimes and it just wasn't appropriate either for our situation. It was for the disabled or terminally ill, but hardly any of it applied to a CDH situation.
Dawn Torrence Williamson Administrator Age: 36 Joined: 01 Jun 2007 Posts: 3883 Location: NC, USA MembersFirstName: Dawn ChildsFirstName: Jeremy ChildsMiddleName: Shane ChildsLastName: Torrence DueDate: 1993-02-04 BirthDate: 1993-01-28 DeathDate: 1999-09-11 State: NC Country: USA	Posted: Sun Oct 21, 2007 1:30 pm  Post subject:  (No subject) Ok, how many volunteers do we have? If you'd like to volunteer to help with the baby book, please e-mail me at volunteer@cherubs-cdh.org _________________ mom of Shane (1/28/93-9/11/99) LCDH x 6, multiple complications and birth defects, Duke PICU first 10 months, trach for 3 years, vent for 2 years, oxygen for 2.5 years, developmentally delayed, cerebra palsy, hearing impaired, blind for 1 yr, home-schooled, Mic-Key button and severe feeding issues, pneumonia, blood infection, ASD, pulmonary sequestration, tracheomalacia, bilateral undescended testes, hypospadius, etc... you name it, the kid probably had it, except for ECMO. Walked, did sign language, adored Sesames St and books and his Precious Moments doll... despite all a very, very happy and loving and generous kid. Lost to extremely rare complications due to reherniation and gastropleural fistula at age 6 and a half. Also wife to my amazing, supportive, wonderful husband, Craig and step-mom to my incredible 13-yr-old twins, Braden and Garret also President & Founder, CHERUBS since 1995
TammySpohr Age: 38 Joined: 21 Sep 2007 Posts: 185 MembersFirstName: Tammy ChildsFirstName: Bryston ChildsLastName: Spohr BirthDate: 2005-04-12 State: Ca Country: USA	Posted: Tue Oct 23, 2007 2:39 pm  Post subject:  (No subject) You are soooooo SMART. How do you come up with these ideas? Because I could find a baby book for Bryston 70 days in the NICU, I just created a scrapbook instead. I love to scrapbook! I'll email ya, I'd love to help.
Dawn Torrence Williamson Administrator Age: 36 Joined: 01 Jun 2007 Posts: 3883 Location: NC, USA MembersFirstName: Dawn ChildsFirstName: Jeremy ChildsMiddleName: Shane ChildsLastName: Torrence DueDate: 1993-02-04 BirthDate: 1993-01-28 DeathDate: 1999-09-11 State: NC Country: USA	Posted: Tue Oct 23, 2007 3:04 pm  Post subject:  (No subject) Ok, those of you that want to volunteer, please e-mail me! And those of you who have scrapbooked baby books for your cherubs, please scan those for us! Actually, should we combine the baby book idea with the Parent Reference Guide? _________________ mom of Shane (1/28/93-9/11/99) LCDH x 6, multiple complications and birth defects, Duke PICU first 10 months, trach for 3 years, vent for 2 years, oxygen for 2.5 years, developmentally delayed, cerebra palsy, hearing impaired, blind for 1 yr, home-schooled, Mic-Key button and severe feeding issues, pneumonia, blood infection, ASD, pulmonary sequestration, tracheomalacia, bilateral undescended testes, hypospadius, etc... you name it, the kid probably had it, except for ECMO. Walked, did sign language, adored Sesames St and books and his Precious Moments doll... despite all a very, very happy and loving and generous kid. Lost to extremely rare complications due to reherniation and gastropleural fistula at age 6 and a half. Also wife to my amazing, supportive, wonderful husband, Craig and step-mom to my incredible 13-yr-old twins, Braden and Garret also President & Founder, CHERUBS since 1995
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CHERUBS Forum Index » How You Can Help » Awareness Activities, Fundraisers, Angels for CHERUBS and more! (Public) » Baby Books?

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