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CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Awareness and Support Forum Index » Memberlist	Goto page 1, 2, 3 ... 61, 62, 63  Next

#	Private Message	Status	Username	E-mail	Location	Joined	Posts	Last Visit	Website	Album	SurvivorOrNonSurvivor	MembersFirstName	MembersLastName	Relationship	ChildsFirstName	ChildsMiddleName	ChildsLastName	DueDate	BirthDate	DeathDate	StreetAddress2	City	State	ZIPCode	PhoneNumber	SideofCDH	TypeofCDH	AgeDiagnosedInUtero	AgeDiagnosedNeonatal	Polyhydramnios	InUteroSurgery	TrachealLigation	SteroidTreatments	TypeofBirth	FamilyHistoryofBirthDefects	InfoReleasePermission	PublishingPermission	MatchPermission	NewsletterMailingList	Matches
1			admin		North Carolina	21 Nov 2006	657	Thu Jan 07, 2010 9:00 pm			Due	Admin	Admin	admin	Admin		Admin					Admin	Admin	0	NULL	Unknown	Unknown			Yes	Yes	Yes	Yes	Vaginal		Yes	No	Yes	Yes
2			ElizabethPascacio Hedgepe			31 May 2007	0	Never			Survivor	Elizabeth	Pascacio Hedgepeth	Mother	Mary	G.	Pascacio-Hedgepeth	2007-05-12				Anaheim	CA	92802	703-864-9566		Unknown		0						0	Yes	No	No		No Matching
3			ElizabethDoyle-Propst			31 May 2007	0	Never			Non-Survivor	Elizabeth	Doyle-Propst	mother	Cecilia	Winn	Propst						VA			left	Agenesis of Left Hemidiaphragm		22	TRUE	FALSE	FALSE		C-Section	23	Yes/Unanswered	No	Yes/Unanswered	No - Is On-Line	Internet
4			KellyGarner			31 May 2007	0	Never			Due	Kelly	Garner	Mother			Garner	9/11/2006				Kokomo	IN	46901		Unknown	Unknown		0	FALSE	FALSE	FALSE			0	No	No	No		No Matching
5			KathleenFeron			31 May 2007	0	Never			Due	Kathleen	Feron	Mother			Galluscio	2006-10-29				Pawling	NY	12564	845-855-9702	Left	Bochdalek		0	FALSE	FALSE	FALSE			0	No	No	No		No Matching
6			SobhaMuppirala			31 May 2007	0	Never			Due	Sobha	Muppirala	Mother			Muppirala	2006-12-22				Irving	TX	75063	9728970547	Left			0	FALSE	FALSE	FALSE			0	No	No	No		No Matching
7			RosieDelgado			31 May 2007	0	Never			Due	Rosie	Delgado	Mother	Miguel		Delgado	9/6/2006				SAN JOSE	CA	95135	408-274-1761	Unknown	Unknown		0	FALSE	FALSE	FALSE			0	Yes	No	Yes
8			Shawn and BeckyKaufman			31 May 2007	0	Never			Due	Shawn and Becky	Kaufman	Parents	Carissa	Julaine	Kaufman	8/30/2006				Davidsville	PA	15928	814-288-2538				0						0	No	No	No		No Matching
9			AngelaMarch			31 May 2007	0	Never			Due	Angela	March	Mother			March					Harlow	Essex	CM19 4HP	01279 302693	Left	Bochdalek		0	FALSE	FALSE	FALSE			0	Yes	No	Yes
10			ChristineSweigart			31 May 2007	0	Never			Due	Christine	Sweigart	Mother			Sweigart	1/16/2007				Indianapolis	IN	46208	317-925-2070	Left	Unknown		0	FALSE	FALSE	FALSE			0	Yes	No	Yes
11			ChristinaTennyson		Tucson, Arizona	31 May 2007	844	Mon Mar 08, 2010 6:26 pm			Survivor	Christina	Tennyson	Mother	Nicole		Tennyson		2007-01-06			Tucson	AZ	85745	520-877-9220	Left-Sided	Posterolateral CDH	18	0	Yes	No	No	No	Cesearean	2--paternal grandfather missing arm, nephew borderline autistic	Yes	Yes	Yes	No	Daughter Nicole born 01/06/07 with LCDH. NG tube almost a year, currently using G-tube. Has some developmental delays, scoliosis, eosinophilic esophagitis (EE), Duane's syndrome, and Reflux.
12			JenniferRoberts			31 May 2007	0	Never			Due	Jennifer	Roberts	Mother	Jonah		Rittenger	12/27/2006				Renton	WA	98059	425 430 9043	Left	Unknown		0	FALSE	FALSE	FALSE			0	No	No	Yes
13			MaeghanRucker			31 May 2007	0	Never			Due	Maeghan	Rucker	Mother	Nicholas	Gilbert	Treska	12/22/2006				Parma	OH		216-780-0544		Unknown		0						0	No	Yes	Yes	No	Search Engine
14			GeoffreySorenson			31 May 2007	0	Never			Due	Geoffrey	Sorenson	Father			Sorenson	1/27/2007				Homer	NY	13077	607-345-0542	Unknown	Unknown		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
15			ElaynaTurner			31 May 2007	0	Never			Due	Elayna	Turner	Mother	Wesley	Raymond	Paxson	2/4/2007				Bryant	IN	47326	260-251-0455	Left	Unknown		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
16			JessicaSchmaltz			31 May 2007	0	Never			Due	Jessica	Schmaltz	Mother	Allison	Faith	Schmaltz	3/4/2007				Randleman	NC	27317	336-625-2473	Left	Unknown		0	FALSE	FALSE	FALSE		FISH-amnio came back nothing"			Yes	Yes	Yes	From Another Web Site
17			DanielleMeyer			31 May 2007	0	Never			Due	Danielle	Meyer	Mother	Leanne	Elizabeth	Meyer	12/23/2006				victorville	CA	92394	7602455383	Unknown	Unknown		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
18			McHargue			31 May 2007	0	Never			Due	Alicia	McHargue	Mother	Levi	Daniel	Blanchard	3/9/2007				Gatesville	TX	76528	(254)865-7525	Left	Bochdalek		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
19			MichelleHausmann			31 May 2007	0	Never			Survivor	Michelle	Hausmann	Mother	Madeline	Joy	Hausmann	3/12/2007				lake oswego	OR	97034	503-675-5320	Left	Unknown		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
20			ChasityOden			31 May 2007	0	Never			Due	Chasity	Oden	Mother	Thomas	Robert Blaine	Rodgers	2/15/2007				Hermitage	TN	37076	6156866500	Left	Unknown		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
21			AmberEngebretson			31 May 2007	0	Never			Due	Amber	Engebretson	Mother			Engebretson	5/4/2007				Hillsboro	OR	97123	private	Unknown	Unknown		0	FALSE	FALSE	FALSE			0	Yes	No	No		No Matching
22			ClaireMoon			31 May 2007	0	Never			Due	Claire	Moon	Mother			Moon	12/10/2006				Richmond	BC	V6Y 4E7	(778) 863-7671	Right	Unknown		0	FALSE	FALSE	FALSE			0	No	No	No		No Matching
23			CrystalNale			31 May 2007	0	Never			Due	Crystal	Nale	Mother	David	Elisha	Nale	3/3/2007				Nashville	NC	27856	252-904-9747	Unknown	Unknown		0	FALSE	FALSE	FALSE			0		Yes	No	Yes	Search Engine
24			CarrieClayton			31 May 2007	0	Never			Due	Carrie	Clayton	Mother	Elizabeth		Ballenger	4/10/2007				Grants Pass	OR	97523	541-292-4578	Unknown	Unknown		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
25			CarrieBaker			31 May 2007	0	Tue Jan 06, 2009 4:58 pm			Survivor	Carrie	Baker	Mother	Noah	D.	Baker	6/6/2007				Fort Wayne	IN	46845	260-637-7109		Unknown		0						0	Yes	Yes	Yes
26			NinaAbrahim			31 May 2007	0	Never			Due	Nina	Abrahim	Mother			Abrahim	3/31/2007				n ridgeville	OH	44039	(216)235-9401	Right	Unknown		0	FALSE	FALSE	FALSE			0	No	No	No		No Matching
27			TanyaGottschalk			31 May 2007	0	Never			Due	Tanya	Gottschalk	Mother		Jo	Gottschalk	5/7/2007				Logan	KS	67646	n/a	Unknown	Unknown		0	FALSE	FALSE	FALSE			0	No	No	Yes
28			JacklynJohnson			31 May 2007	0	Never			Due	Jacklyn	Johnson	Mother	Neyo	James	Winkel	4/3/2007				Austin	MN	55912	1-507-437-0963	Left	Unknown		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
29			LoriSlone			31 May 2007	0	Never			Due	Lori	Slone	Mother	Isabella	Grace	Ferrone	6/14/2007				Chaplin	CT	6235	860-455-0472	Unknown	Unknown		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
30			Josh and BarbieStevens			31 May 2007	0	Never			Due	Josh and Barbie	Stevens	Parents	Luke	Dylan	Stevens	3/12/2007				APO	AE	9128	1.15E+13	Left	Unknown		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
31			TracyMitchell			31 May 2007	0	Never			Due	Tracy	Mitchell	Mother	Jonathan	Cole	Mitchell	5/14/2007				Dickson	TN	37055	615-441-4957	Left	Unknown		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
32			JenniferLuning			31 May 2007	0	Never			Due	Jennifer	Luning	Mother	Jordan	D	Spearman	6/30/2007				Bridgeport	CT	6606	203-396-0171		Unknown		0						0	Yes	Yes	Yes		241 Summit Street
33			DarcyMiller		Coburg, Oregon	31 May 2007	11	Sun Jun 21, 2009 11:51 pm			Survivor	Darcy	Miller	Mother	Owen	James	Miller	3/16/2007	3/6/2007			COBURG	OR	97408	541-345-2741	Right-Sided	Unknown	33	0	Yes	No	No	No	Cesearean	0	No	No	No		No Matching
34			Dyanide Beer			31 May 2007	0	Never			Due	Dyani	de Beer	Mother	Aryana	Niabi	Claassen	4/13/2007				Walmer	Eastern Cape	6070	27415815098	Left	Posterolateral		0	FALSE	FALSE	FALSE			0	Yes	No	Yes
35			HeatherWarren			31 May 2007	0	Never			Due	Heather	Warren	Mother	Lillith	Kaidence	Cory	8/11/2007				Las Vegas	NV	89183	(702) 485-0488	Unknown	Unknown		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
36			JeanAshner			31 May 2007	0	Never			Due	Jean	Ashner	Mother	Luke		Ashner	6/15/2007				Owensville	MO	65066	573-437-5034		Unknown		0						0	No	No	No	No
37			KerriStillwagon			31 May 2007	0	Never			Due	Kerri	Stillwagon	Mother	Kayla	Nicole	Rubio	6/16/2007				westbury	NY	11590	516-204-6122	Left	Unknown		0	FALSE	FALSE	FALSE			0	No	Yes	Yes
38			VictoriaJensen		Frederick, MD	31 May 2007	3	Sat Apr 05, 2008 10:43 am			Survivor	Victoria	Jensen	Mother	John (Jack)	V.	Jensen		2007-08-20			Frederick	MD	21702	unlisted	Left-Sided	Agenesis of Left Hemi-Diaphragm (Missing Entire Left Side)	19	0	Yes	No	No	No	Cesearean	0	Yes	Yes	Yes
39			LisaGreene			31 May 2007	0	Never			Survivor	Lisa	Greene	Mother	Grace	M	Greene	6/27/2007				Lake Preston	SD	57249	605-847-9643	Left	Unknown		0	TRUE	FALSE	FALSE			0	Yes	Yes	Yes
40			AmandaMagee			31 May 2007	0	Never			Due	Amanda	Magee	Mother			Magee	10/4/2007				Dumfries	Dumfries and Galloway	DG2 0AR	1387262972	Left	Unknown		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
41			CindyWilliams			31 May 2007	0	Never			Survivor	Cindy	Williams	Mother	Claire	Elizabeth	Williams					Birmingham	AL	35216	205-682-9633		Unknown		0						0	No	No	Yes
42			ShannonThacyk			31 May 2007	0	Never			Survivor	Shannon	Thacyk	Mother	Sophia	J.	Thacyk-Cho	9/21/2007				Edmonton	Alberta	T5T 5G3	780-993-7013	Unknown	Unknown		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
43			WinnieChan			31 May 2007	0	Never			Due	Winnie	Chan	Mother			Chan					Fo Tan	Hong Kong	na	+852 94321952	Left	Bochdalek		0	FALSE	FALSE	FALSE			0	Yes	No	Yes
44			AliaMcCarty			31 May 2007	0	Never			Survivor	Alia	McCarty	Mother	Adrias		McCarty	11/12/2007				Providence	RI	2909	401-215-4836	Left	Unknown		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
45			SarahDeskins			31 May 2007	0	Never			Survivor	Sarah	Deskins	Mother	Jeremiah	Isaac	Deskins	10/12/2007				Cardington	OH	43315	1(419)512-3446				0						0	Yes	Yes	Yes
46			VickieBrownfield			31 May 2007	0	Never			Survivor	Vickie	Brownfield	Grandparent	christan	l	Brownfield	10/15/2017				danville	IL	61834	(217) 4467692	Right	Agenesis of the Hemi-Diaphragm		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
47			SaraWalsh		Connecticut	31 May 2007	0	Wed Feb 27, 2008 1:08 pm			Non-Survivor	Sara	Walsh	Mother	Joseph		Walsh	1/8/2008				Wolcott	CT	6716	203-879-3841	Unknown	Unknown		0						0	No	Yes	Yes
48			Keith and LynetteMoloney		Long Island	31 May 2007	51	Tue Nov 10, 2009 8:49 am			Non-Survivor	Keith and Lynette	M.	Parents	Ethan	James	Moloney	2007-10-17	2007-10-17	2007-11-09		Miller Place	NY		631-764-3455	Left-Sided	Unknown	18	0	Yes	No	No	No	Cesearean	0	Yes	Yes	Yes		We conceived our twins by using Clomid. We found out around 18 weeks that we were having2 boys, and that one of them was diagnosed with CDH. We went to CHOP to get some further information, and Schneiders Childrens hospital where our sons were born. Ehtan was put on ventilators right away, and that night operated on and put on ECMO. Ethan fought bravely for 23 days without any improvement and no signs of coming off ECMO. He developed blood infections and his kidneys started to fail. We didn't want to see him suffer any more and made the most difficult decision ever. We took him off of ECMO. Ethan James lived for 23 days. 23 days of Blessings.
49			HopeVegter			31 May 2007	0	Never			Survivor	Hope	Vegter	Mother	Jayden	Jonathan	Vegter	12/10/2007				Lakeland	Fl.	33812	863-709-8476	Left	Bochdalek		0	FALSE	FALSE	FALSE			0	Yes	No	Yes
50			Theresa O'Neill			31 May 2007	0	Never			Survivor	Theresa	O'Neill	Mother	Connor	James	Otero	11/29/2007				Philadelphia	PA	19134	215-200-7395	Right	Eventration of the Hemi-Diaphragm		0	FALSE	FALSE	FALSE			0	Yes	Yes	Yes
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