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CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Awareness and Support - Congenital Diaphragmatic Hernia Research, Awareness & Support Welcome to CHERUBS The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support We invite all CDH parents and medical professionals to join our free membership to access our on-line services.   Happy 15th Birthday to CHERUBS!!!!! Posted on Sun Feb 07, 2010 9:05 pm by Dawn Torrence Williamson Happy 15th Birthday to CHERUBS!!!!! Our charity was founded on February 7, 1995. We have a new homepage, new CDH Awareness Shop, new info for parents, more web sites and many great projects. The site is up - still under construction though so pardon our mess! The forums will undergo some changes in the next 30 days as well. http://www.cdhsupport.org This news item has 61 Views and 7 Comments. Post your comment   CHERUBS 2010 Congenital Diaphragmatic Hernia Conference Posted on Tue Feb 02, 2010 1:12 pm by Dawn Torrence Williamson CHERUBS 2010 Congenital Diaphragmatic Hernia Conference There has been a change in place and time! Due to the expense of holding a conference in San Francisco, the lack of volunteer support and the costs to families to stay in such an expensive city, we have decided to move this year's conference to Orlando, Florida. We had decided upon San Francisco over a year ago. We hoped the economy would've gotten better by this year but that hasn't been the case. Orlando is much more affordable at about half the cost to CHERUBS and to families attending. CHERUBS 2010 International Congenital Diaphragmatic Hernia Conference Orlando, Florida May 13 - 16, 2010 We have also changed the dates and moved the event up to May. Our conference will coincide with the American Pediatric Surgical Conference and we will work closely with that group to offer CDH families and CDH researchers new services at this year's event. We will have amazing guest speakers as always but we will also include research displays by all the hospitals currently recruiting CDH families for research studies. We will offer discount Disney and Universal tickets as well. Our conference days are always half days so that families can fmilies have time to enjoy the location and all the attractions that it has to offer. Details to be posted very soon! Stay tuned to the conference site at http://www.cherubsconference.org This news item has 154 Views and 12 Comments. Post your comment   CDH Awareness Trademark and Summit with BoH Posted on Wed Jan 13, 2010 5:16 pm by Dawn Torrence Williamson Several weeks ago, CHERUBS put out an olive branch to try to end the turmoil surround the trademark on CDH Awareness and all the ensuing drama, slander and juvenile behavior that has plagued our community so that we can all move forward and focus all of our time, efforts and resources towards helping families affected by Congenital Diaphragmatic Hernia. CHERUBS is very disappointed to report that the trademark settlement / peace conference / CDH summit will not take place. Breath of Hope, Inc has decided that they will not attend any meetings to discuss the trademark and other issues. They do not want to work together and do not wish to discuss any common goals to work positively for the CDH community and that they still want to retain the trademark. This is the last of several attempts that CHERUBS has made to try to bring peace to the CDH community and to protect all CDH families right to raise awareness. Every attempt has been denied. As a goodwill gesture, we have offered not to contest their trademark on Congenital Diaphragmatic Hernia Awareness Day and let Breath of Hope have their day and their proclamation without our CDH parents participating at all to avoid more drama, threats and attacks. Even though that trademark and the proclamations are being used in their argument that only Breath of Hope should be able to use the phrase Congenital Diaphragmatic Hernia Awareness. We simply as that the trademark on Congenital Diaphragmatic Hernia Awareness be removed and all charities, groups, researchers and families be free to raise CDH awareness in peace. Elizabeth Doyle-Propst is not open to any negotiating. This is very disappointing because it is in the entire CDH community's best interests for all CDH groups to work together for the common good. We extend our apologies and regrets to all those affected by this trademark and this drama. We tried but we have failed to put an end to this nonsense. We have already had several complaints and issues filed against us again in the past few weeks in regard to our volunteers using the phrase "Congenital Diaphragmatic Hernia Awareness" without permission of Breath of Hope, Inc. We also received an "anonymous" threat that we will be reported to the IRS if we try to lobby a Congressional Bill against the trademark - a threat that seems is not empty. Also in the past few weeks, an inaccurate blog posting that "CHERUBS is suing" Breath of Hope was posted by that group. This is not true and is a twist of facts. Breath of Hope, Inc filed to own a trademark on "Congenital Diaphragmatic Hernia Awareness" and then began to subject CHERUBS to various company complaints, federal complaints, state complaints, etc. We have no choice but to continue the fight against the trademark on "Congential Diaphragmatic Hernia Awareness" to protect our organization and the entire CDH community. We will also continue to work on the Congressional Bill to help protect all causes from this type of corporate greed. I'm sorry, everyone. We tried. This news item has 85 Views and 2 Comments. Post your comment   End of Year Donations Posted on Sun Dec 27, 2009 8:56 pm by Dawn Torrence Williamson Happy New Year!!!!! As we wrap up yet another year, we would like to remind everyone that it's that time of year again - time to make your end of year donations to receive tax credit on next year's returns! We know that 2009 has been a very hard year for most financially. We know that donations are hard to make and as such, you should well research every charity that you donate to. Some must knows about CHERUBS as you contemplate which charity to support with your hard earned money: * All donations made to CHERUBS, both cash and in-kind are tax-deductible. CHERUBS has been a 501(c)III non-profit organization since 1995. * Donations made by December 31st are tax-deductible for 2009's tax return. * In-kind donations, including those made to our CDH HOPE Totebag project, are tax-deductible. * Donations can be made in honor or in memory of someone. Donations made in lieu of flowers at memorial services are also deeply appreciated. * Donations are listed in our newsletter and families receive donation acknowledgements when someone sends a gift in honor or in memory of their cherub. * Donations are used to directly assist families affected by CDH through 5 different funds (listed below). Donations made to specific funds can be made by clicking on the fund name below: * CDH Family Support Fund – this fund covers all support services, including our web sites, newsletters, conferences, New Member Packets, get-togethers and other general operating costs. CHERUBS does a lot for CDH families and the CDH community and we incur quite a few costs during so. Just 1 newsletter mailing is now over $3000 for printing and posting with so many members. Our conferences are also expensive. Our monthly expenses are several hundred dollars for ink, postage, web site hosting fees, etc. It takes a lot to fund an organization with almost 3000 members. Remember, no one at CHERUBS gets paid and we have no office so every penny directly helps CDH families. And all of our services are FREE so we do charge membership fees. * CDH Research Fund – to pay for the $1000 a year cost of research database hosting, programmer and to raise money for research organizations such as the International CDH Study Group. The CDH Study Group is a collective group of over 30 hospitals around the world specializing in CDH research. We chose to support groups like this one because we know that every cent will go directly to research on Congenital Diaphragmatic Hernia and research will be brooder and more advanced when collaborating with dozens of hospitals and researchers together. * CDH Family Assistance Fund – A majority of this fund will go to help families with travel expenses such as airline tickets and gas. It will not go to lodging because CHERUBS highly recommends the free lodging available at Ronald McDonald Houses. Families will submit confidential applications to assistance and a committee will consider each request. Our goal is to make sure that all CDH families can afford to get to their cherub’s medical center and have a place to stay so that they can concentrate on their children instead of travel worries. We hope to assist a family through this fund by Spring, 2010. The remaining small percentage of this fund will go to the CDH HOPE Totebag Project, a new program that helps new and expectant families by supplying them with items needed during their cherub's hospital stay. * CDH Awareness Fund – this fund helps to raise awareness of Congenital Diaphragmatic Hernia through balloon releases, giving away free CDH ribbon buttons and brochures and other items. It will also cover advertising costs, billboards, video production and much more. * CDH Scholarship Fund – for CDH survivors and siblings. Families can raise money to give scholarships in honor / memory of their cherubs. We hope to award our first scholarship in 2010. * Donations can be made on-line on our web site through PayPal.com, a secure site that we've used for over 10 years for donations. http://www.cdhsupport.org/donate/index.php PayPal accepts all major credit cards from around the world. * Donations can be made by mail through check or money order (U.S. currency only please) made out to CHERUBS, 3650 Rogers Rd #290, Wake Forest, NC 27587 * CHERUBS never charges families for our services, materials or totebags. Our membership is free and always has been. Against the advice of accountants, auditors and other non-profit leaders, we have resisted mandatory subscription fees or charging for entrance into our forums or events. We have asked for members to make annual donations if they can afford to do so but it is never required. We want every CDH family who needs help to be able to freely access it. * CHERUBS currently does not receive any grant funding. Our charity subsists solely from donations and fundraisers. * CHERUBS has very little overhead with no office, donated phone lines and internet and no utility bills. * Only 2% of our members donate annually, with less than .5% volunteering. We depend on public donations greatly to keep our services and charity running. * Donations make possible our annual CDH Conference, our newsletter, our web sites, our CDH HOPE Totebags, awareness materials, postage fees, awareness events and our 5 Funds. We do a whole lot of good on less than $30,000 a year in donations! * Your donation will never go to pay anyone's salary. CHERUBS is run solely by volunteers and always has been. Our President has logged over 25,000 hours of volunteer work at CHERUBS in the past 15 years and our other volunteers have donated 1,000's of hours as well to help families affected by CDH. * We do not pay lawyers, accountants, marketing executives or other 3rd parties and try to find sponsors and volunteers for in house needs such as web design, programming, graphic art, etc. We are blessed to have many amazing volunteers and pro bono professionals who want to help CDH families. * CHERUBS has been audited and publicly files financial reports every year on our web site as well as with GuideStar.com - so you can rest assured where your donation money goes. * CHERUBS is a GuideStar Exchange Partner in Trust recognized charity. * CHERUBS posts our 990 tax returns and our financial reports - to show how much money in donations that we receive - and where your donations are spent. In detail. Very few charities do this, as by law it's only required to show people our tax returns (and only if they ask). CHERUBS has an open book policy when it comes to our financial info and our missions. We believe in high ethics and honesty and making sure that our members, and the public, know what we stand for. * CHERUBS never "filters" donations. We do not serve as a bank system for donors to channel money to other institutions and use those donations as a marketing ploy for our charity. We encourage members to donate directly to hospitals and other charities themselves - since they are also non-profits. Credit should be given to those who worked hard to fundraise and raise awareness - the families. That said - if you'd like to donate directly to specific CDH center, we highly encourage you to do so and ask that you do not donate to them indirectly through us. That just makes more paperwork for both charities and takes the appreciation from the true donor - you! We would be happy to help you locate a contact person to accept your donation. * CHERUBS never "banks" donations. Our donations are used immediately to serve the CDH community, instead of sitting in an account doing no one any good except collecting a little bit of interest. By law, charities cannot "save" large amounts of funds as the entire mission of any charity is to serve others. * CHERUBS has never used a cent of donation money for any lobbying, trademarks, lawyers fees, or other government or legal issues. We make sure that every penny donated to our charity directly helps CDH families, not politics or special interests. * CHERUBS is a grassroots charity run by a large array of those affected by Congenital Diaphragmatic Hernia. Our Board of Directors includes CDH parents, grandparents, survivors, nurses, doctors and the world's top CDH researchers. No other charity in the world has such a respected, educated or experienced group of leaders who care so much about the CDH community. * CHERUBS has been a non-profit for 15 years. We are not a fly-by-night organization. We are the world's first and largest charity for Congenital Diaphragmatic Hernia with over 3000 members in 38 countries and all 50 states. We are a trend-setter in the services that help families affected by CDH, leading the way for other groups and newer charities who have followed in our footsteps. We will continue to lead until Congenital Diaphragmatic Hernia is no more. We are devoted to finding the cause, prevention and best treatments for CDH. * CHERUBS is a founding member of the Alliance of Congenital Diaphragmatic Hernia Organizations, dedicated to work together with integrity on one mission - helping CDH families. At CHERUBS, we know there are a lot of charities out there who are equally as worthy of your time and donation. We appreciate your consideration and your support of those affected by Congenital Diaphragmatic Hernia and hope that you will choose CHERUBS as the recipient of your kindness so that we can continue to help CDH families around the world. This news item has 55 Views and 0 Comments. Post your comment   12 Days of CDH Christmas.... (Dec 10 - 22nd!).... Posted on Thu Dec 10, 2009 5:52 pm by Dawn Torrence Williamson From December 10th to December 22nd, CHERUBS will be unveiling 12 new deliveries to the CDH community. From news, services, fundraisers, awareness projects and products and CDH research - we'll be bringing even more to the CDH community table. Some little, some big. But all to help children and families affected by Congenital Diaphragmatic Hernia. http://cdhsupport.blogspot.com/ What will they be? Stay tuned to find out! This news item has 63 Views and 2 Comments. Post your comment   Update Letter to members of CHERUBS. Posted on Mon Dec 07, 2009 3:11 pm by Dawn Torrence Williamson Dear Members, I hope that you all are having a blessed holiday season thus far. We have a lot going on at CHERUBS, please take a few minutes to catch up and join in: CDH & CHERUBS NEWS: * $5 Million Chase Community Giving Contest - Vote for CHERUBS! Help choose which charities receive $5,000,000 in grant money from Chase. CHERUBS has the opportunity to win money that could do a lot of good for our cause!!! Voting is done through Facebook. http://apps.facebook.com/chasecommunitygiving/charities/374756?src=wallpost&ref=mf You must become a fan of the application, then vote. Please forward to your family and friends! * CHERUBS 12 Days of CDH Christmas - From December 10th to December 22nd, CHERUBS will be unveiling 12 new deliveries to the CDH community. From news, services, fundraisers, awareness projects and products and CDH research - we'll be bringing even more to the CDH community table. Some little, some big, but all to help children and families affected by Congenital Diaphragmatic Hernia. What will they be? Stay tuned to our blog to find out! http://cdhsupport.blogspot.com/ * CHERUBS HOPE (Helping Other Parents Expecting) Totebag Project - our first totebag was delivered in October in person to the family of Andrew Hobbs at Duke University. It was an honor to meet Andrew and though he grew his wings, he touched our hearts forever. We have sent out over 50 totebags since October to new and expectant CDH parents and our supplies are getting low. Thank you to everyone who has donated for this project!!!!! Families around the world have sent in blankets, cameras, journals, teddy bears, footprint kits, pens, notebooks and so much more!!!! If you can donate, please do! I personally plan to hold a baby shower in memory of my cherub, Shane, to gather items for these totebags - I hope you will consider doing this in honor or memory of your cherub too! It's a great low-key way to raise awareness and donated items and have fun too! http://www.cdhsupport.org/donate/hope.php * 2010 CDH Awareness Media Blitz Campaign - in 2010 CHERUBS will be conducting a massive international Congenital Diaphragmatic Hernia Awareness campaign through a number of venues. Through the internet, newspapers, events, Congress, television, music and magazines we will be raising CDH awareness through a world-wide marketing blitz. We will also be raising CDH research money and reaching even more families who need support! We are VERY excited about all of our plans for 2010! To do this, we need the help of photographers and models (CDH survivors). It doesn't matter where you live, you can help. We need photographers and cherubs around the country helping us to pull off this campaign! If you would like to help in other ways (marketing, media, etc) please let us know! If you are interested in volunteering, please e-mail us at awareness@cdhsupport.org and let us know how you would like ot help and where you are located. * 2010 International CDH Conference - to be held in July, 2010 in San Francisco, California. Details to be posted in January! http://www.cdhconference.org * Congressional Bill for CDH Research - there is so little research for Congenital Diaphragmatic Hernia compared to other birth defects and illnesses and even less funds for researchers. CHERUBS is working hard to raise more government funding for CDH. We need your help - if you have any connections to get this bill into Congress, please let us know. We will be asking members to send letters soon and hope that you will all participate in this historic event of bringing CDH Awareness and Research to Capitol Hill!. We are also collecting photos and video of cherubs to send in with letters to our law makers to get this bill passed. http://www.cdhbills.org * Congressional Bill for Awareness - We are also working on another bill to save CDH Awareness. As most of you know, the term "Congenital Diaphragmatic Hernia Awareness" has been trademarked. CHERUBS and several other CDH organizations are fighting this trademark to keep CDH Awareness free for everyone. This trademark is the only trademark of it's kind on the USPTO registry. We are working hard with other causes to stop this trademark and any future trademarks that would hinder awareness of any birth defect or other cause. We are collecting videos to submit to our Congressmen with the bill we hope to get introduced into the Senate in 2010. http://www.cdhbills.org * CDH Research Site - the research database site will be unveiled soon! This database will include over 2500 CDH patients and their medical histories, with research on long-term patient information that can be tabulated on the fly. Working with the International CDH Study Group, we hope to find the cause, prevention and best treatments for Congenital Diaphragmatic Hernia. http://www.cdhresearch.org * Adopt A Hospital Program - our new program to help bring more informational materials to CDH parents has been very productive. We have many hospitals donated and we've received several letters, calls and e-mails from doctors thanking us for the kits of brochures, Parent Reference Guides, newsletters, both "Stories of Cherubs" books and more. We still have many more hospitals up for adoption. http://www.cdhsupport.org/donate/hospitaladopt.php * International Children's Memorial Day - The 2009 International Children's Memorial Day is Sunday, December 13th. At 7:00 pm in each time zone, people will be lighting candles to remember all children lost. Over a half million babies have been affected by Congenital Diaphragmatic Hernia since 2000. This means that over a quarter of a million babies have have been lost to this devastating birth defect. Over 800 babies are lost to CDH in the United States alone each year. CHERUBS has participated in NCMD for over a decade. We remember all the families who mourn their children from Congenital Diaphragmatic and those who mourn their children lost from other circumstances. This week our web site home page will go black in memory of those cherubs lost as we list every child in membership lost to CDH. It remain this way until December 14th. This is our solemn tribute to those cherubs with wings as well as our way to bring awareness to the many children lost to CDH. * ACDHO - The Alliance of Congenital Diaphragmatic Hernia Organizations is a group of over 50 CDH charities, sites and researchers working together to bring support, research and maintain integrity in the CDH Community. ACDHO has a new leader and a new site coming soon, along with the "ACDHO Seal of Integrity" so that CDH parents will know which groups have their best interests at heart and which hospitals have an expertise in CDH care. CHERUBS is proud to be a founding member of ACDHO. * CHERUBS Silver Lining Newsletter - Our latest issue will be out in 2 weeks, full of the latest news, photos from our 2009 conference in San Antonio and other events and much more! * CDH Baby Book - the first version is now included in our CDH HOPE Totebags but the final version will be available soon on our site for free download and hard copies for purchase on our Cafepress.com store and Amazon.com * New CHERUBS Volunteers - we have many new volunteers and a new Volunteer Coordinator, Barbara Wagner. If you would like to contact your State / Country Representative or volunteer yourself, please visit http://cdhsupport.org/volunteers/ * CHERUBS Non-Profit Status - in November, 2009 CHERUBS status went from from a private non-profit foundation to a public non-profit foundation as per the advice of our lawyers and the IRS. Public non-profit status will allow us to work on the Congressional Bills and to gain grant funding to bring even more services to CDH families. CHERUBS has been a 501(c)III non-profit organization since February, 1995. * Having trouble logging on to our web site? - Please send an e-mail to login@cdhsupport.org with your name and cherub's name and we'll respond as soon as we can to help you out! HOLIDAY FUNDRAISERS: * 2010 CDH Cherubs Calendar - featuring over 650 beautiful faces of CDH - the most photos of CDH patients ever collected! If you have ever submitted your cherub's photo, it will be included. http://www.cafepress.com/cherubs.415954058 * Hand Crafted CDH Awareness Ribbon Ornaments - hand-made by member, Barbara Wagner, these beautiful ornaments are wonderful gifts. Buy 1 for a loved one and another for yourself! All proceeds are donated to CHERUBS. http://cdhsupport.blogspot.com/2009/11/congenital-diaphragmatic-hernia.html * CDH Awareness Kits - The first CDH Awareness Kits ever created! They include a totebag, Parent Reference Guide, CDH Awareness Ribbon buttons, CDH Awareness Bracelets, brochures and a CDH Awareness Ribbon car magnet. http://www.cdhsupport.org/donate/cdhawarenesskit.php Order your kits by December 9 and they will be mailed out December 10th, in time for holiday gifts. * CDH Awareness Bracelets - Great stocking stuffers! In pink or blue, for adults or children. Just $4.00 each with FREE shipping! http://www.cdhsupport.org/donate/cdhawarenessbracelets.php Order your bracelets by December 9 and they will be mailed out December 10th, in time for holiday gifts. * CHERUBS Cafepress Store - 1000's of official CDH Awareness items and more!!! The world's first CDH Awareness Store has sweatshirts, books, calendars, mugs, teddy bears, onesies, bibs, t-shirts, clocks, totebags and so much more. Many designs to chose from suitable for kids, men and women. http://www.cafepress.com/cherubs * Personalized CDH Awareness Ribbons - over 100 CDH families have requested free personalized CDH Awareness ribbons that have been added to Cafepress. http://www.cafepress.com/cherubs/5842791 All ribbons submitted by December 7th will be posted by December 8th to be available for holiday purchases! If you would like one please send your cherub's photo, name and date(s) to ribbons@cherubs-cdh.org * New 2009 Holiday Gifts! - lots of great new holiday designs with our CDH Awareness Ribbon! http://www.cafepress.com/cherubs/3918237 * 2009 Holiday Kid's Drawings - see these great drawings and purchase items on our Cafepress Store! All entries will be posted by December 8th! http://www.cafepress.com/cherubs/6953277 * Adopt A Hospital Program - A great gift in honor or in memory of a cherub for the holidays. We still have many more hospitals up for adoption! http://www.cdhsupport.org/donate/hospitaladopt.php WAYS THAT YOU CAN HELP FOR FREE: * Vote for CHERUBS in the $5 Million Chase Community Giving Contest - CHERUBS has the opportunity to win money that could do a lot of good for our cause!!! Voting is done through Facebook. http://apps.facebook.com/chasecommunitygiving/charities/374756?src=wallpost&ref=mf You must become a fan of the application, then vote. Please forward to your family and friends! * Goodshop / Goodsearch for CHERUBS - You can raise money just by searching or shopping on-line! By going through Goodsearch.com instead of Google, Yahoo or another search engine, Goodsearch donates money to CHERUBS. It does not cost you a penny and it is powered by Yahoo. You can shop at 1000's of stores! To make it even easier, you can download the free GoodSearch toolbar! It is safe and easy to install and it makes it so easy to search on-line and to shop as well! And it helps stores to remember that you are GoodShopping for CHERUBS even if you forget to go through the GoodSearch site to go shopping! You can download it at http://www.goodsearch.com/toolbar/ Don't forget to choose CHERUBS as your designated charity. * Firstgiving.com - is a free on-line fundraising site that allows you to create free web pages to collect donations for CHERUBS in honor or in memory of your cherub! You can write your story, upload your photo and send the page to your family and friends. They handle all donations through credit cards, you see who has donated and they send us a check. It's an easy, safe way to collect donations from family and friends around the world. http://www.firstgiving.com/10125 * Submit Your Cherub's Photographs - for the CDH Song Video, the CDH Research Congressional Bill and our new web site. Send your cherub's photo to awareness@cdhsupport.org with your cherub's name and date(s). * Submit Your Cherub's Videos - for the CDH Song Video, the CDH Awareness Congressional Bill and the CDH Research Congressional Bills. Upload your video to YouTube and also send it to us at awareness@cdhsupport.org You can see other submitted videos at * Congressional Bills - help us to find a Congressman or Senator to sponsor these bills by writing to your state law makers. Information and letter templates will be available soon. Visit this site and e-mail us if you would like to help. http://www.cdhbills.org * CDH Awareness Trademark - sign the petition against this trademark and ask family and friends to sign as well. http://www.ipetitions.com/petition/cdhawareness/index.html * Submit Your Cherub's Story & Photo - for our newsletter, web site, projects and more. Send them to membership@cdhsupport.org * Raise On-Line CDH Awareness - visit our site and grab and CDH Awareness Ribbon graphics to use for free on your site, blog or e-mail signature. We have free graphics for Blogspot and Myspace, a CDH counter, CDH webring and much more. All of our graphics are free to use and copyright free. http://www.cdhsupport.org * Refer CDH Families - make sure that other CDH families have support and information as well. Forward this e-mail to them. CHERUBS is free to join! http://www.cdhsupport.org DONATE TO CHERUBS: * Donate On-Line - Donations to CHERUBS are tax-deductible and much needed! No one at CHERUBS receives a salary and we are currently not grant funded. CHERUBS subsists solely on volunteers, donations and fundraisers. All donations go to help us further of our mission of helping families affected by CDH through research, awareness and support. http://www.cdhsupport.org/donate/index.php * Donate By Mail - You can also donate by check or money order to CHERUBS, 3650 Rogers Rd #290, Wake Forest, NC 27587, USA. U.S. currency in the form of checks or money orders only please. Checks can be made out to CHERUBS. * CHERUBS HOPE Totebag Project - We need many items for this project. http://www.cdhsupport.org/donate/hope.php May this holiday season bring all of our 3000+ members around the world peace, health and joy. My thoughts and prayers are with all CDH families and my heart goes out to those of you who are grieving. Please know that CHERUBS is here for all CDH families if you need support, have questions or just need a friend. Happy Holidays! Sincerely, Dawn M. Torrence Williamson CHERUBS President & Founder CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support Phone: 919-610-0129 Fax: 815-425-9155 www.cdhsupport.org dawn.williamson@cherubs-cdh.org CHERUBS 3650 Rogers Rd, #290 Wake Forest, NC 27587 USA ------------------------------------------------------------- This e-mail is sent to members of CHERUBS. Your name and contact information is never divulged to anyone other than our staff for official CHERUBS purposes. These e-mails will now arrive once a month. To be removed from this mailing list, please send an e-mail to membership@cherubs-cdh.org This news item has 66 Views and 1 Comments. Post your comment   National Children's Memorial Day Posted on Sun Dec 06, 2009 4:09 pm by Dawn Torrence Williamson This week our web site home page is black in memory of those cherubs lost as we list every child in membership lost to CDH. It remain this way until December 14th. This is our solemn tribute to those cherubs with wings as well as our way to bring awareness to the many children lost to CDH. http://www.cdhsupport.org The 2009 National Children's Memorial Day is Sunday, December 13th. At 7:00 pm in each time zone, people will be lighting candles to remember all children lost. Over a half million babies have been affected by Congenital Diaphragmatic Hernia since 2000. This means that over a quarter of a million babies have have been lost to this devastating birth defect. Over 800 babies are lost to CDH in the United States alone each year. CHERUBS has participated in NCMD for over a decade. We remember all the families who mourn their children from Congenital Diaphragmatic and those who mourn their children lost from other circumstances. If you would like your cherub's name added or removed, please e-mail us at awareness@cdhsupport.org You *must* be a member of CHERUBS to be listed. You can join for free at http://www.cdhsupport.org/members Members names will automatically be included. Please contact us if you do not want your cherub's name listed. Please make sure to have your membership form (profile) updated with your cherub's name and status if you have recently lost your cherubs. This news item has 57 Views and 1 Comments. Post your comment   Photographers & Models Wanted for Awareness Blitz Posted on Sat Nov 28, 2009 9:30 am by Dawn Torrence Williamson In 2010 CHERUBS will be conducting a massive international Congenital Diaphragmatic Hernia Awareness campaign through a number of venues. Through the internet, newspapers, events, Congress, television, music and magazines we will be raising CDH awareness through a world-wide marketing blitz! We will also be raising CDH research money and reaching even more families who need support! We are VERY excited about all of our plans for 2010!!! To do this, we need the help of photographers and models (CDH survivors). It doesn't matter where you live, you can help! We need photographers and cherubs around the country helping us to pull off this campaign! If you would like to help in other ways (marketing, media, etc) please let us know! If you are interested in volunteering, please e-mail us at awareness@cdhsupport.org and let us know how you would like ot help and where you are located. This news item has 99 Views and 1 Comments. Post your comment   Submit Your Videos to Go to Congress Posted on Sat Nov 28, 2009 9:29 am by Dawn Torrence Williamson Submit Your Videos to Go to Congress & help other families affected by Congenital Diaphragmatic Hernia! http://www.youtube.com/watch?v=U4Unz-z4um4 We are working on a new video to release with the Congressional Bill to stop the trademark on CDH Awareness. This bill and a CDH Research Bill will be ready next week for CDH families to help submit to Congress! As most of you know the trademark on "Congenital Diaphragmatic Hernia Awareness" has wrecked havoc in the CDH community with charities being threatened with lawsuits other cyber bullying. It is the ONLY trademark of it's kind in the USPTO and is currently being Petitioned to Cancel by CHERUBS with the support of many other CDH organizations and over 6000 CDH families and pediatric surgeons. The Free Awareness Bill video will have the history of why the trademark was created along with court audio, court documents and other public information to show that this trademark was created to harm others and prevent awareness. But it will feature these videos and these beautiful faces standing up against the trademark to keep awareness free for those affected by Congenital Diaphragmatic Hernia and all other causes. Other causes and charities will also be submitting their own videos as well. We will be working with the entire non-profit community to help keep awareness free for everyone and to stop this precedent setting trademark that limits awareness on a devastating birth defect that desperately needs awareness. The Cherubs Bill video will include photos and videos of cherubs and their stories battling CDH. As we all know there is virtually no funding for CDH research. CDH has affected over half a million babies since 2000 - this means CDH has killed over a quarter million babies since 2000. More research on Congenital Diaphragmatic Hernia to find the cause, prevention and best treatments is desperately needed. When the paperwork gets submitted to our Congressmen and Senators, the videos will be included. If you would like your cherub on this video please upload your video to YouTube! Grieving families can also participate! Make sure to e-mail us at awareness@cdhsupport.org with the Youtube link to your video! This news item has 112 Views and 2 Comments. Post your comment   2010 CDH Cherub Calendar Now Available! Posted on Fri Nov 13, 2009 2:25 pm by Dawn Torrence Williamson CHERUBS 2010 Calendar is now available! Featuring the faces of over 650 beautiful children (and adults!) born with Congenital Diaphragmatic Hernia! This full color, large size 11 x17" calendar is now available for $24.99 on our store at: http://www.cafepress.com/cherubs.415954058 This calendar will make a beautiful holiday gift that will be treasured for years to come, long after 2010 is over! We would like to say a huge thank you to the 100's of CDH families who contributed photographs for this year's calendar! So this is where I've been hiding the past 2 weeks - this and a few other projects have kept me busy but it's worth it! I hope I got everyone's photos, we really tried to make sure everyone who said they wanted to be included was! But with over 650 photos to go through and add, it was very overwhelming and if I overlooked anyone I am very deeply truly sorry! You can view larger pictures of the calendar on the cafepress site. Cover See, it pays to send us photos of your kids dressed like cherubs! January February March April May June July September October November December This news item has 345 Views and 15 Comments. Post your comment Goto page 1, 2, 3  Next

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DISCLAIMER:The information on all pages of this web site is for education only. It is not meant to be used in place of proper medical care and advice. CHERUBS does not encourage or discourage any medical treatments or procedures. Our purpose is to educate families and medical care providers so that they may make the best decisions for the patients' interests. You can not compare your child to other children born with CDH, they are all different. The opinions aired by members are not necessarily the views of all members, staff, or of CHERUBS.


 

   

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